Publications

Multi-morbidity in older people with intellectual disability

Rafat Hussain, Stuart Wark, Matthew P. Janicki, Trevor Parmenter, & Marie Knox Source: Journal of Applied Research in Intellectual Disabilities – Wiley Online Library 20 April 2020 (https://doi.org/10.1111/jar.12743) Abstract Background There is paucity of research from Australia about comorbidity in older people with intellectual disability (PwID). This paper examines the burden of chronic diseases and …

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Q&A on COVID-19 and Down Syndrome

The NTG is proud to have been a contributor to the attached Q&As on COVID-19 and DS.  The collaboration with a number of our national and international organization colleagues was very productive. 

State Data and Policy Actions to Address Coronavirus

States are taking aggressive action to slow down the spread of the novel coronavirus and prepare their health care systems for dealing with those who become ill with COVID-19, the disease the virus… Source: The Henry J. Kaiser Family Foundation In late 2019, a new strain of coronavirus emerged in China. With the number of …

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Effectiveness of a HealthMessages Peer-to-Peer Program for People With Intellectual and Developmental Disabilities

Effectiveness of a HealthMessages Peer-to-Peer Program for People With Intellectual and Developmental Disabilities (2019). Beth Marks, Jasmina Sisirak, Rubia Magallanes, Kristin Krok, & Dina Donohue-Chase. Intellectual and Developmental Disabilities. 2019 June 57(3):242-258. doi: 10.1352/1934-9556-57.3.242. Abstract: Effective strategies to improve health education, food choices, and physical activity are vital for people with intellectual and developmental disabilities (IDD), as their …

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Impact of the HealthMatters Train-the-Trainer Program on the Health and Health Behaviors of Staff Supporting Adults With Intellectual and Developmental Disabilities

Impact of the HealthMatters Train-the-Trainer Program on the Health and Health Behaviors of Staff Supporting Adults With Intellectual and Developmental Disabilities (2019). Beth Marks, Jasmina Sisirak, Yen-Ching Chang, and Ryan Murphy Abstract The health status and health behaviors among support staff providing daily support for people with intellectual and developmental disabilities (IDD-SS) in community-based organizations (CBOs) have not …

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Research in Focus: A Weekly Digest of New Research from the NIDILRR Community

Peer to Peer- Training Peer Health Coaches to Lead a Health Messages Program for Their Peers with Intellectual and Developmental Disabilities  A study funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).  Source: National Rehabilitation Information Center (NARIC) Download PDF in English and Spanish People with intellectual or developmental disabilities (IDD) …

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Promoting Healthy Choices and Community Changes

A free, online educational program designed for promotores de salud and community health workers. About This Program As community health workers, our work helps people enjoy good health. Promoting Healthy Choices and Community Changes will teach you how to promote individual-level and community-level changes toward good health. This free e-learning program helps build the capacity …

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Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support

Karen Dodd, Karen Watchman, Matthew P. Janicki, Antonia Coppus, Claudia Gaertner, Juan Fortea, Flavia H. Santosi, Seth M. Keller, and Andre Strydom Aging & Mental Health, 22:11, 1406-1415.  DOI: 10.1080/13607863.2017.1373065 ABSTRACT Objectives: Post diagnostic support (PDS) has varied definitions within mainstream dementia services and different health and social care organizations, encompassing a range of supports that are offered …

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Main conclusions agreed during the Summit on Intellectual Disability and Dementia

PRINCIPALES CONCLUSIONES ACORDADAS DURANTE LA CUMBRE SOBRE DISCAPACIDAD INTELECTUAL YDEMENCIA ISSN: 0210-1696 DOI: http:/ /dx.doi.org/10.14201/scero2018492115122 Matthew P. JANICKI University of Illinois at Chicago, USA Karen WATCHMAN University of Stirling, Scotland, UK Juan FORTEA ORMAECHEA Centro Medico de Down de la Fundaci Catalana de Sindrome de Down (FCSD) y Servicio de Neurologia def Hospital de la Santa …

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