Publications

Supporting advanced dementia in people with Down syndrome and other intellectual disability: consensus statement of the International Summit on Intellectual Disability and Dementia

M. McCarron,1 P. McCallion,2 A. Coppus,3 J. Fortea,4 S. Stemp,5 M. Janicki6 & K. Watchman7 1School of Nursing and Midwifery Studies, Trinity College Dublin, Dublin, Ireland 2 College of Public Health, Temple University, Philadelphia, PA, USA 3 University Medical Center, Radboud Universiteit, Nijmegen, Gelderland, The Netherlands 4 Fundacio Catalana per a la Recerca i la …

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2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers: Final Report

The final report from the 2017 National Research Summit on Dementia Care, Services and Supports for Persons with Dementia and their Caregivers has been released. Download Summit Final Recommendations 5-17-18 and the Summit Final Report 5-17-18. The RRTCDD and the National Task Group on Intellectual Disabilities and Dementia Practice developed one of the pre-summit reports and presented …

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Health conditions, functional status and health care utilization in adults with cerebral palsy

Family Practice, 2018, 1–10 doi:10.1093/fampra/cmy027 Robert J Fortuna1,*, Ashley Holub2, Margaret A Turk3, Jon Meccarello4 and Philip W Davidson4 1 Departments of Internal Medicine and Pediatrics and 2 Department of Public Health Sciences, University of Rochester, Rochester, NY, USA, 3 Department of Pediatrics and Physical Medicine and Rehabilitation, State University of New York Upstate Medical …

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Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis

Fujiura, G. T.,Li, H., & Magana, S. (2018) Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis. Intellectual and Developmental Disabilities. 56, (2) p. 101–118. DOI: 10.1352/1934-9556-56.2.101 Abstract Health services and associated costs for adults with intellectual and developmental disabilities (IDD) were nationally profiled and the predictors of high …

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Impact of Medicaid Managed Care on Illinois’s acute health services expenditures for adults with intellectual and developmental disabilities

Yamaki, K., Wing, C., Mitchell, D., Owen, R. & Heller, T. (2018) Impact of Medicaid Managed Care on Illinois’s acute health services expenditures for adults with intellectual and developmental disabilities, Intellectual and Developmental Disabilities, 56 (2), p. 133–146. DOI: 10.1352/1934-9556-56.2.133 Abstract States have increasingly transitioned Medicaid enrollees with disabilities from fee-for-service (FFS)to Medicaid Managed Care …

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Removing Barriers and Facilitating Access: Increasing the Number of Physicians With Disabilities

Source: Removing Barriers and Facilitating Access: Increasing the Number of Physicians With Disabilities: Academic Medicine Meeks, Lisa, M.; Herzer, Kurt; Jain, Neera, R. Download PDF ABSTRACT Nearly one-fifth of the U.S. population has a disability, and many of these Americans experience disparities in the health care they receive. In part, these health care disparities result …

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Paving the Way for Medical Students, Physicians With Disabilities

Source: Paving the Way for Medical Students, Physicians With Disabilities Tuesday, March 13, 2018 |by Stacy Weiner, Senior Writer A new report explores the experiences of students and residents with disabilities and outlines promising practices for medical schools and teaching hospitals. Medical schools and teaching hospitals are striving to support learners with disabilities, yet they often …

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Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

Journal of Gerontological Social Work (JGSW) 61(4) 411-431. Nancy Jokinen is the senior author. A number of Summit members, representing various nationalities, participated in the writing of this article [Nancy Jokinen, Tiziano Gomiero, Karen Watchman, Matthew P. Janicki, Mary Hogan, Frode Larsen, Anna Beránková, Flávia Heloísa Santos, Kathy Service, & Jim Crowe] Abstract: This article, an …

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Mayo Clinic Alumni Association | ‘It can be done:’ Mayo Clinic School of Medicine evolves, accommodating a student’s disabilities

Source: Mayo Clinic Alumni Association | ‘It can be done:’ Mayo Clinic School of Medicine evolves, accommodating a student’s disabilities When Leah Grengs Thompson, M.D. (MED ’17), was 6 years old, the Americans with Disabilities Act (ADA) became law. The ADA prohibits discrimination against individuals with disabilities in all areas of public life including jobs, …

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Smoking Among Ohioans with Disabilities

The Ohio Disability and Health Program has developed a fact sheet to raise awareness regarding smoking disparities faced by Ohioans with disabilities. http://go.osu.edu/ODHPsmokingfacts2018 or download ODHP_Smoking-Factsheet-2018. For further information, please contact Ann Robinson, Program Coordinator, Ohio Disability and Health Program. Overview Smoking accounts for half a million deaths every year and is of particular concern among …

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